IN A FAMILY WAY - AUTISM RESEARCH IN 2016

By bobb |

A SUMMARY OF AUTISM DISCOVERIES IN 2016 AND WHAT THEY MEAN TO FAMILIES

For decades, the autism community has known that autism affects the entire family. Biological parents have been included in autism studies to examine where genetic mutations come from, but always with an eye for understanding the affected individual. This year in research saw a much bigger focus on family members of those with autism, particularly siblings. The goal of these studies is to understand the genetic and biological nature of autism so that help can be provided not just to those with a diagnosis, but to family members.

Many studies focused on what is known as the broader autism phenotype, previously explored in biological parents. The broader autism phenotype refers to some behavioral features of autism, including those in emotion, language, and social skills that do not meet the level of a diagnosis of autism spectrum disorder. Rather, they have been termed anything from “intermediate” autism to “a hint of autism.” Joe Piven and James Harris hypothesized this year that Bruno Bettleheim may have tragically misinterpreted these features, in the absence of a true understanding of autism, as “refrigerator mothers.” Clinicians have urged scientists to note these symptoms in a way that does not create a new diagnostic category and noting certain social, personality and language characteristics in family members has been crucial for nailing down the underlying biology.

The controversy over autism’s most common therapy

By bobb |

Applied behavioral analysis is the most widely used therapy for autism, but some people say its drills and routines are cruel, and its aims misguided.

BY ELIZABETH DEVITA-RAEBURN

When Lisa Quinones-Fontanez’s son Norrin was diagnosed with autism at age 2, she and her husband did what most parents in their position do — they scrambled to form a plan to help their child.

Autism Speaks No Longer Seeking Cure

By bobb |

For the first time, the nation’s largest autism advocacy organization has revamped its agenda and one notable objective is no more.

Autism Speaks’ board of directors voted in late September to modify the organization’s mission statement, marking the first such change since the nonprofit was established in 2005.

The new iteration is shorter and strikes a markedly different tone. Gone are terms like “struggle,” “hardship” and “crisis.” Also absent is any mention of seeking a cure for the developmental disorder.

10-Year-Old Boy's Moving Poem Gives A Glimpse At Life With Autism

By bobb |

A class assignment turned into something more for one family after their son wrote a touching poem and gave a peek into life with autism. 

Benjamin Giroux, a 10-year-old boy who is on the spectrum, wrote a poem titled “I Am” as an assignment for his fifth grade class. His father, Sonny Giroux, explained to The Huffington Post that every line of the poem already included two words like "I am" and "I wonder" as a prompt for the students to complete. In his poem, Benjamin wrote that he is “odd” and “new” and that he feels “like a castaway.”

Best Plan For Autism Starts With Behavioral Therapy

By bobb |

Although there is no cure for autism, various interventions can help diminish the symptoms, sometimes profoundly. Since both social and communication differences are part of the diagnosis, behavioral and speech language therapy are typically the foundation of intervention. But one challenge in planning, and a stress for parents, is that no single educational plan works for all children.

5 Lessons My Autistic Son Taught Me About Fatherhood

By convenor |

Ron Fournier is the author of the upcoming Love That Boy: What Two Presidents, Eight Road Trips, and My Son Taught Me About a Parent’s Expectations.

"Love your child for who he is, not who you want him to be”

Moments after my son was diagnosed with autism, my wife confronted me in the doctor’s parking lot. “It’s time to step up,” Lori said. Be a better father. She told me to take a series of road trips with Tyler—to bond with our 12-year-old boy and teach him to navigate a world that isn’t wired like him.

Turns out, Tyler did the teaching.