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There’s lots about autism to be angry about, but funding models isn’t one of them

By bobb |

Holly Hughes

Note: given the strong pro-government stance in this article, Ms Hughes should have also disclosed her affiliation with the Liberal Party - see http://www.afr.com/brand/rear-window/election-2016-connie-fierravantiwe…;

The National Disability Insurance Scheme is a game changer for people with a disability and everyone who loves and supports them. Families will finally have effective choice and control over who provides the services that they actually want and need.

Living with Spiderboy: Raising a child with ASD

By bobb |

When you’re a parent of a child with high-functioning autism, you learn to make allowances. But should borderline arachnophobe Ian Rose allow his son a pet spider for his birthday?

Ian Rose

Spiders. Why did it have to be spiders? The latest in a series of obsessive enthusiasms that have characterised our son’s early childhood, the spider is not a beast to which I’ve ever warmed.

information about Disability Support Pension

By convenor |

Dear the Hon Jane Prentice MP

A4 members have expressed concern about Centrelink’s Disability Support Pension (DSP) eligibility and processes. They commented that “the letter you get from Centrelink tells you nothing about where to find the criteria for how [Centrelink] judges in/out”.

A4 could not find clear descriptions on government websites (or elsewhere either) of:

Disability inclusion practices failing some families, says experienced WA educator

By bobb |

By Nicolas Perpitch

The Western Australian education system is failing to meet the needs of some highly disabled children because of inflexibility and a lack of expertise, according to an experienced educator.

Stephen Breen, the immediate past-president of the WA Primary Principals Association and a teacher and principal for 42 years, has been joined by disability advocates in criticism of the Education Department's inclusion practices.

When a family member has a disability, what happens when the carer doesn't come?

By bobb |

The disability support industry is facing a dramatic shortage of trained carers, leaving thousands of families without regular care and much needed respite.

Lateline spent a day with Fiona Hough and her five-year-old son Charlie, who has autism, to see how they cope when the carer doesn't come.

"Not having that person there, it's amazing how quickly you can get down into really dark territory," Ms Hough said.

Disability agencies say they are struggling to recruit staff and keep up with the demand from families in need.

Tasmania: DHHS Provides A Free Evidence-Based Platform with Best-Practice Intervention Tools

By bobb |

Today, 1 in 63 children will be diagnosed with an Autism Spectrum Disorder (according to A4 2015).

For the past two years, the Tasmanian Department of Health and Human Services has been supporting schools and families in behaviour management and skill development with the world’s leading evidence-based platform Rethink.

Rethink provides a free on-line solution that helps teachers:

  • Develop custom learning curriculum (aligned to Australian Curriculum)

  • Monitor and track student progress

'We almost lost him': Canberrans with special needs turned away from hospital

By convenor |

Sherryn Groch

As new research reveals Australians with intellectual disabilities are dying avoidable deaths, two Canberra carers share their own 'horror' stories.

It started with just a runny nose and a routine trip to the doctor. Then Gungahlin mother Therese Bean noticed her son was losing weight. 

Urgent need for cause of death reporting system for Australians with intellectual disability

By bobb |

DAN WHEELAHAN

The deaths of more than 700 Australian adults with an intellectual disability could have been avoided with more appropriate health care and monitoring, a UNSW study has revealed.

Research by UNSW has found that while Down syndrome itself doesn’t cause death, it is still coded that way in a flawed classification system. Photo: Shutterstock.