Autism Aspergers Advocacy Australia

The NDIS regularly posts its Q&A items. For example, the NDIA's Q&A - 9 April 2018 says:

My son has Autism level 1 and not eligible for the NDIS, however he was eligible for previous government support. Why can he not access the NDIS and what other avenues do we now have?

The ECEI approach provides an opportunity for children aged 0-6 years of age with developmental delay or disability to access timely, targeted and individualised short term support, build on family strengths and available community and mainstream supports. Early Childhood Partners will work with families and carers to link them into programs in the community which help them to support their child.

Media Release

As declared by the United Nations, the 2018 World Autism Awareness Day focuses on the importance of empowering autistic women and girls and involving them and their representative organisations in policy and decision making to address these challenges.

"Girls with disabilities are less likely to complete primary school and more likely to be marginalised or denied access to education. Women with disabilities have a lower rate of employment than men with disabilities and women without disabilities. ...

Paul Micallef, an autistic adult, made a video aimed at parents of children with autism, especially parents of newly-diagnosed children. It's positive; it's a message about your future and your child's future.

Does your NDIS plan fall short? This article may help understand NDIS strategies and tactics ... and how you (and others) might combat them.

Sam Paior - NDIS News

Budget pressures are mounting, staffing for the NDIA and its LAC partners is becoming more and more difficult, and dissatisfaction with the Scheme is growing, as the Administrative Appeals Tribunal (AAT) made a big, pointy, important decision last week.

Section 34 of the NDIS Act, the “Reasonable and Necessary” definition, is among the most important, and contentious, frameworks of the NDIS. It is used to determine what supports and services will be funded in an NDIS plan. However, its interpretation varies, almost on a day to day basis, with the NDIS trying desperately to protect its budgets. The AAT’s ruling last week on the case of young LNMT (name redacted to protect her privacy) has set a precedent that is indeed, a game changer.

Mr Robert De Luca

CEO of the National Disability Insurance Agency

Dear Mr De Luca

Autism Aspergers Advocacy Australia, known as A4, is the national grass-roots advocacy group representing autistic people and others living with autism spectrum disorder (ASD). A4 and others in the ASD community have tried to engage with the National Disability Insurance Scheme (NDIS) from the outset. But there has been very little progress.

Adam McCrimmon, University of Calgary

I often get asked “Does my child have Asperger’s?” in my clinical work. Or, “Do I have Asperger’s?”

These are challenging questions to answer. They have stimulated much debate among clinicians, researchers, and those who have identify with the term over the past several years.

There is a related Change.org petition you can sign: https://www.change.org/p/pru-goward-don-t-let-the-ndis-leave-kids-homel…

Jade Macmillan

Parents of children with severe disabilities in NSW are "terrified" they could lose access to around-the-clock care due to a funding stoush between the State Government and the National Disability Insurance Scheme (NDIS).

About 1,000 children with disabilities access voluntary out-of-home care across the state, including overnight respite services and residential placements.

Talissa Siganto

Queensland's Police Commissioner says he backs the officers who shot a teenager in the chest after a domestic dispute on Wednesday afternoon.

Jai Hunt, 16, was allegedly threatening police officers with a knife when they arrived at his home in Springfield, south-west of Brisbane.

The Police Union maintains officers had no option but to shoot Jai.

Dear Minister and Assistant Minister

Autism Aspergers Advocacy Australia, known as A4, recently received a very inadequate response (MC17-001434) to our emails to you dated 5/11/2017 and 11/12/2017. Our emails to you expressed extensive concerns about the NDIS and specifically its approach to early intervention for autistic children.

Ms Christine Faulkner, General Manager of the NDIS, says: “The Assistant Minister has asked me to reply to you on her behalf”.

The result must be so disheartening for you. Ms Faulkner’s response to us, on your behalf, is so disappointing for a collection of reasons.

A response (of sorts) to this letter can be seen at http://a4.org.au/node/1654 (it is also very disappointing).

LINA ZELDOVICH

Starting next year, clinicians worldwide may be using a new, streamlined set of criteria to diagnose autism.