Autism Aspergers Advocacy Australia

Amy Smith​

• Read more about Conversations about autism need to include people like me

In the USA, another report shows autism rates of 2.24% or 1 in 45: see http://www.cdc.gov/nchs/data/nhsr/nhsr0…

Presentation by Monique Blakemore to CEDAW, United Nations 30th October 2015 

Autistic women are a marginalised sector of the worlds largest minority group, the disabled community. There is an estimated 51,870,000 autistic women worldwide, a similar population to England.

Autistic women are subjected to systemic disadvantage in most areas of their lives. Autistic women experience exclusion socially, in education, in their personal lives, in the judicial system and in access to healthcare. Autistic leadership, exemplified by organizations such as Autism Women Matter, the Scottish Women’s Autism Network (SWAN) and Alliance Autiste, is necessary to challenge stigma and discrimination. 

Real, effective, and meaningful participation of autistic people, regardless of gender, is encapsulated in the phrase ‘nothing about us without us’ and is the aim of the autistic rights movement. Representation of autistic people by groups and individuals is frequently unfunded and unsupported. Unfortunately, ‘tokenism’, which is the illusion of consultation, is over-representative of the autistic advocacy experience. Autistic voices can be crowded out by those of professionals and parent caregivers that love and support us, but may see autism through their own experience. 

A range of initiatives are needed to address autism in Australia, the cost of which to the budget has been put at at least $20 billion a year.

We are researchers from the University of Cambridge who are working in partnership with women with an autism spectrum condition (ASC) to understand how autism affects the experience of motherhood.
 

SALLY GLAETZER

KEELAN Law likes reading National Geographic, watching Mr Bean and creating spreadsheets on the computer. He likes his cappuccinos half-strength and extra frothy. Most of all, he loves ice-skating.

The 19-year-old has severe autism. Until recently, he struggled to communicate his basic needs and desires, even to those closest to him.

Australia's largest autism service provider is under investigation after staff built a large wooden box to lock up distressed clients at a Melbourne day centre.

Disturbing images show the box was fitted with a metal lock and kept inside a classroom at Autism Spectrum Australia's (Aspect) site at Heatherton, in the city's south-east.

Media Release

A major dispute broke out between two autism advocates: they both described the NDIA's eligibility criteria for autistic people as “gobbledygook”, but they are at odds over who said it first.

Bob Buckley, Convenor of Autism Aspergers Advocacy Australia, claims Ms Louise Davies, Deputy Chief Executive Officer from Autism SA, was clearly first to call the NDIA's criteria “gobbledygook”. But Ms Davies says Mr Buckley was first (see http://a4.org.au/node/794).

Researchers are currently analysing data from the Autism CRC Australian Autism Educational Needs Analysis. Nationwide 1,468 respondents participated in the survey from every state of Australia and included: 

·         248 educators,

·         179 specialists,

·         107 students with autism (11 -18 years), and

·         934 parents

Media Release

Jacquie Petrusma, Minister for Human Services 

22 September 2015

Tasmanian living with autism spectrum disorder (ASD) should have every opportunity to reach their goals and to achieve their full potential.

The Hodgman Liberal Government is committed to providing improved support for Tasmanians living with ASD, and that’s why last year we established the Autism Advisory Panel.