review of hyperbaric oxygen therapy for people with autism spectrum disorder

By bobb |

The review concluded:

To date, there is no evidence that hyperbaric oxygen therapy improves core symptoms and associated symptoms of ASD. It is important to note that adverse effects (minor-grade ear barotrauma events) can occur. Given the absence of evidence of effectiveness and the limited biological plausibility and possible adverse effects, the need for future RCTs of hyperbaric oxygen therapy must be carefully considered.

This really suggests that further research is likely to be too risky.

Nonspeaking teen writes profound letter explaining autism

By bobb |

For the first 14 and a half years of Gordy's life, Evan and Dara Baylinson had no reason to believe their son could comprehend anything they said: He had never spoken, and he couldn't really emote. They worried aloud about his future, not filtering what they said, because they didn't think he understood.

But Gordy was absorbing everything.

"My brain, which is much like yours, knows what it wants and how to make that clear," he wrote in a letter he sent to a police officer. "My body, which is much like a drunken, almost six-foot toddler, resists."

Marking Autism Awareness Day, UN officials call for inclusive societies

By bobb |

1 April 2016 – On the eve of the World Autism Awareness Day, United Nations officials highlighted the contributions to humanity by people with autism, noting that shunning them is a “violation of human rights” and a “waste of human potential.”

Addressing a commemorative event this morning, UN General Assembly President Mogens Lykketoft stressed that “autism and other forms of disability are part of the human experience that contributes to human diversity.”

Donald Grey Triplett: The first boy diagnosed as autistic

By bobb |

Donald Grey Triplett was the first person to be diagnosed with autism. The fulfilling life he has led offers an important lesson for today, John Donvan and Caren Zucker write.

After Rain Man, and The Curious Incident of the Dog in the Night-time, the next great autism portrayal the stage or screen might want to consider taking on is the life of one Donald Grey Triplett, an 82-year-old man living today in a small town in the southern United States, who was there at the very beginning, when the story of autism began.

PhD student presents research to United Nations

By bobb |

PhD student Alexa Pohl took on the impressive duty of speaking at a thematic briefing for the United Nations (UN). Ms Pohl, who has just entered the final year of her PhD, was asked to speak as a disability advocate at a briefing for the Committee on the Elimination of all forms of Discrimination Against Women (CEDAW).

The Convention on the Elimination of all forms of Discrimination Against Women was adopted by the UN General Assembly in 1979 and defines what constitutes discrimination against women, as well as outlining the ways in which such discrimination can be eliminated. The Convention represents a large body of work by the Commission on the Status of Women – an intergovernmental body dedicated to gender equality and empowerment of women – and is often referred to as the international bill of women’s rights.

Long-awaited databases reveal breadth of genetic variation

By bobb |

BY KATE YANDELL

Two massive efforts to sequence the DNA of more than 11,000 people are finally complete. Together, they provide the most detailed picture yet of genetic variation across the general population. They also give researchers a starting point for finding genetic variants tied to a variety of conditions, including autism.

CEDAW: autistic women and mothers

By bobb |

Presentation by Monique Blakemore to CEDAW, United Nations 30th October 2015 

Autistic women are a marginalised sector of the worlds largest minority group, the disabled community. There is an estimated 51,870,000 autistic women worldwide, a similar population to England.

Autistic women are subjected to systemic disadvantage in most areas of their lives. Autistic women experience exclusion socially, in education, in their personal lives, in the judicial system and in access to healthcare. Autistic leadership, exemplified by organizations such as Autism Women Matter, the Scottish Women’s Autism Network (SWAN) and Alliance Autiste, is necessary to challenge stigma and discrimination. 

Real, effective, and meaningful participation of autistic people, regardless of gender, is encapsulated in the phrase ‘nothing about us without us’ and is the aim of the autistic rights movement. Representation of autistic people by groups and individuals is frequently unfunded and unsupported. Unfortunately, ‘tokenism’, which is the illusion of consultation, is over-representative of the autistic advocacy experience. Autistic voices can be crowded out by those of professionals and parent caregivers that love and support us, but may see autism through their own experience. 

World Autism Awareness Day - United Nations Secretary-General's Message for 2015

By bobb |

I am hugely encouraged by the growing public awareness of autism spectrum disorders and the increase of public services to many of those affected. World Autism Awareness Day not only fosters greater understanding, it empowers parents into seeking early intervention therapies and calls for the full integration of persons with autism into society. It also invites policy-makers to encourage schools to open their doors to students with autism. With adequate support, they can -- and should -- be educated in the heart of their communities.