NDIS: autism rates blow out in SA, likely to be same nationally

By bobb |

Rick Morton

Social Affairs Reporter, Sydney

Children with autism-spectrum disorders have flooded the trial of the National Disability Insurance Scheme in South Australia and make up almost half of all participants, contributing to a blowout in the numbers which would be replicated across the country when the full scheme launches.

Autism: Sharp spike in cases a result of shifting diagnosis methods, researchers say

By bobb |

Editorial note: The conclusion reached in these these stories is contentious/disputed. Autism is not "swallowing up" other diagnoses as is suggested. Other information is available elsewhere, for example herehere and here.

The way autism is diagnosed has led to an apparent tripling in cases in recent years that does not reflect reality, researchers say.

Rather, more youths with intellectual or developmental disabilities are being reclassified as autistic, the United States-based study published in American Journal of Medical Genetics found.

University of Western Australia Telethon Kids Institute's Andrew Whitehouse said the trend was "almost certainly the same in Australia".

The prevalence of autism in the US was just one in 5,000 in 1975.

It leapt to one in 150 in 2002, and reached one in 68 in 2012, according to the US Centres for Disease Control and Prevention.

"This new research provides the first direct evidence that much of the increase may be attributable merely to a reclassification of individuals with related neurological disorders rather than to an actual increase in the rate of new cases of autism," the study authors wrote.

Brain study reveals insights into genetic basis of autism

By bobb |

UNSW scientists have discovered a link between autism and genetic changes in some segments of DNA that are responsible for switching on genes in the brain.

UNSW scientists have discovered a link between autism and genetic changes in some segments of DNA that are responsible for switching on genes in the brain.

The finding is the result of a world-first study of the human brain that identified more than 100 of these DNA segments, known as enhancers, which are thought to play a vital role in normal development by controlling gene activity in the brain.

What does a life lived on the autism spectrum look like?

By bobb |

The overwhelming sense of feeling ‘different’ is familiar to many of the 230,000 Australians living with autism. But how does that actually play out as an adult in day-to-day life? 

A first of its kind UNSW-led study is aiming to better understand how adults with autism experience their world.

The overwhelming sense of feeling ‘different’ is familiar to many of the 230,000 Australians living with autism. But how does that actually play out in day-to-day life?

THE UNCOUNTED COSTS: CHOICE AND CONTROL FOR PEOPLE WITH BEHAVIOURS OF CONCERN

By bobb |
This study explores how the National Disability Insurance Scheme (NDIS) can best ensure that people with behaviours of concern are offered choice and control in the emerging disability support market.

Summary

Using the experiences of two provider organisations – Anglicare Tasmania and Optia – the research examines what is involved in providing support for people with behaviours of concern. Behaviours of concern can include verbal and physical aggression, damage to property and vehicles and self injurious behaviours. Behaviours of concern are often volatile and can change from day-to-day.

Can inclusive education do more harm than good?

By bobb |

Editor: For most students with ASD, inclusive education is "a better option". But students with ASD, for whom inclusive education is not working, may need alternatives. ABS reports (see here) shows 6% of Australian students with "autism" did not attend school in 2012 - our experience/observation is that much of this is through "school refusal" (see page, report and other). Contrary to persistent misinformation from Inclusion hard-liners, little actual evidence is available supporting inclusive education for children with autism/ASD (see http://a4.org.au/node/458, http://a4.org.au/node/626 and/or http://a4.org.au/node/763​).

Recently, a teacher expressed his misgivings about the “inclusion at all costs” ideology of modern education. Despite being well supported by his school and hugely in favour of inclusive practice, he outlined his difficulties in managing a young fellow with Down Syndrome whose behaviour in the classroom was extremely difficult, and increasingly dangerous. This resulted in children and staff leaving the school, citing concerns about their safety and psychological health.

The article attracted derision from many, but also a sigh of relief from other teachers and a surprising number of parents of children with a disability.

Why autism spectrum disorders are under-diagnosed in women and girls

By bobb |

Many people tend to think of autism as a male disorder, but emerging research shows that girls often have different symptoms which cause them to slip through the net. These girls and women are often misdiagnosed or go undiagnosed altogether. Lynne Malcolm and Olivia Willis report.

With the exception of a few notable women around the world, autism is widely considered to be a disorder that affects men.