disappointing media release on NDIS

The Honourable Paul Fletcher MP
Minister for Families and Social Services

The Honourable Sarah Henderson MP
Assistant Minister for Social Services, Housing and Disability Services

Dear Ministers

Your media release (10/12) on increased pricing to support people with complex needs is disappointing for the following reasons.

  1. the previous Minister promised "extensive consultation with stakeholders and the community" before making any changes to NDIS operations (see letter MS18-000877, 23/5/2018). Although he broke that promise within days (see http://a4.org.au/node/1762), we hoped stakeholder engagement on NDIS-related matters would improve. Clearly it hasn't: you and the NDIA did not consult the ASD community properly despite many NDIS participants with complex needs being autistic. Claiming that a decision was "informed by consultation with 1000 stakeholders" does not make it true.
  2. the NDIS is meant to be person-centred, not a two or three tier approach. The NDIS did not explain its two-tier approach, and we have no idea what the new three-tier approach means. We have no reason to believe this will make a difference.
  3. The focus here seems to be on helping people (with "complex needs") access available services. Your approach does not recognise a fundamental issue; that essential services, especially clinical level behaviour supports, simply do not exist. Increasing funding for case coordination, etc. does not address the fundamental problem, the lack of some essential services (especially behaviour supports).
  4. $140m is peanuts - it's 0.63% of the $22 billion NDIS annual budget. The reality is a proper analysis of an improved complex needs scheme should show the changes saving the NDIS significant amounts of money in the long-run. This announcement seems to us to be about new Ministers appearing to do something but not actually doing anything. Please provide a proper description of what this "change" is about and how it is meant to help.

Hopefully, you can see why Autism Aspergers Advocacy Australia (known as A4) is disappointed.

A revised A4 Brief on ASD for Politician is attached (we gave Mr Trent Tolra an earlier version). A4 is still keen to discuss with you or your staff how the Government might tackle any of the issues raised in the Brief.

--
Bob Buckley
Convenor, Autism Aspergers Advocacy Australia (A4)
website: http://a4.org.au/
11/12/2018
A4 is the national grassroots organisation advocating for autistic people, their families, carers and associates. A4 is internet based so that Australians anywhere can participate.

“The first step in solving any problem is recognising there is one.” Jeff Daniels as Will McEvoy in The Newsroom.

 


Note: the exchange below. A4 has not heard from the NDIS about this since then.


11/1/2019

Hi Mr Cullen

as I live in Canberra and will not be going away this summer I am easily available to meet at any time. When would suit you?

My number is 04xx xxx xxx

Bob Buckley
Convenor, Autism Aspergers Advocacy Australia (A4)
website: http://a4.org.au/

A4 is the national grassroots organisation advocating for autistic people, their families, carers and associates. A4 is internet based so that Australians anywhere can participate.

“The first step in solving any problem is recognising there is one.” Jeff Daniels as Will McEvoy in The Newsroom.
 

On 10/1/19 5:08 pm, CULLEN, David wrote:

Dear Mr Buckley

Thank you for your email of 11 December 2018 to The Honourable Paul Fletcher MP, Minister for Families and Social Services, and The Honourable Sarah Henderson MP, Assistant Minister for Social Services, Housing and Disability Services. The Ministers have asked me to reply to you on their behalf.

I would be very happy to meet with you to discuss the issues that you raised in your correspondence and to provide you with further information on the new price control arrangements that were announced on 10 December 2018. I can be contacted at david.cullen@ndis.gov.au .

Yours sincerely

David Cullen BA BSc PhD FRSPH FRSS AFACHSM
Principal Economist |
Office of the Scheme Actuary
Strategic Advisor (Price Controls) | Markets, Provider and Sector Development Group
National Disability Insurance Agency

Fellow | Royal Society for Public Health
Fellow | Royal Statistical Society
Associate Fellow| Australian College of Health Service Management
Member | Royal Economic Society
Adjunct Professor | National Centre for Social and Economic Modelling (NATSEM) | University of Canberra
Visiting Fellow | College of Business and Economics | Australian National University
Fellow | Life Course Centre | University of Queensland
Collaborator | Global Burden of Disease Study | Institute of Health Evaluation and Metrics | University of Washington
Past President | Expert Group on the Economics of Prevention | OECD

E david.cullen@ndis.gov.au

<br />
                NDIS delivered by the National Disability Insurance<br />
                Agency

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