cruel NDIS policy targets the most autistic and vulnerable NDIS participants

By convenor |

NDIS policy (AAT Case Management Guide Applied Behavioural Analysis (ABA) - see below) fails some of the youngest and most severely autistic NDIS participants. Clinicians advise that some children with severe/profound or classic autism need intensive early intervention for their autism. NDIS policy (see below) says funding for the required early intervention depends on families winning a case against the government in the Administrative Appeals Tribunal (AAT).

Is generic speech therapy for autistic children evidence-based?

By bobb |

Answer: it appears not.

Recently, the NDIS was unable to provide any evidential basis for having generic speech or occupational therapy listed as a support for autistic children - see https://a4.org.au/node/2674

There are various other examples where evidence supporting generic speech therapy is missing. These include research reviews for Australian Government agencies - in particular

255 Organisations Demand More Time to Codesign NDIS Reforms

By bobb |

Australia's disability sector, including A4, united over the government's poor approach to disability reform. They said: 

A coalition of 255 disability organisations and providers, including Australia’s peak disability representative bodies, have come together to call for urgent action from the Government and the new Minister for the NDIS, Amanda Rishworth, to protect the safety and wellbeing of National Disability Insurance Scheme (NDIS) participants amid rushed reforms.

Australia's Disability Strategy 2021-31 ... 2024 Update - autistic Australians are still missing

By convenor |

14 days after the release of Australia's National Autism ¾-Strategy (NA¾S), the Government released its 2024 update to Australia's Disability Strategy 2021-31 (ADS)

In respect of the ADS, the NA¾S said: 

The Evaluation Good Practice Guide Checklist developed under ADS will underpin the approach to [NA¾S] evaluation activities. 

and 

Autism disability representative organisation's response to National Autism ¾-Strategy

By convenor |

On the 14/1/2025, DSS Minister Rishworth and the federal government released ¾ of its National Autism Strategy (NA¾S)[1]. While we welcome the limited progress planned, we note that the 4th part of a full strategy, the so-called Health Roadmap for Autism, is missing. Also, DSS officials who wrote the ¾-Strategy failed to address many fundamental issues that need urgent action. In its current form, the NA¾S is deeply disappointing to say the very least.

The Need to Protect the Integrity of the National Autism Strategy

By bobb |

Autistic Australians have long faced systemic neglect, with their specific needs often overlooked or diluted under broader, generalized policies. While neurodiversity has gained recognition, we must be clear: the needs of Autistic people are unique and cannot be swept under the umbrella of neurodiversity. To do so risks erasing our voices and our experiences.

A family living with autism responds to the National Autism Strategy (NAS)

By bobb |

Dear Minister,
As parents of an inspiring young man with Profound Autism , we have taken a keen interest in the development of the National Autism Strategy. We appreciate the efforts of many involved, and the commitment to provide a national strategy. We have contributed extensively to the Senate Select Committee on Autism and to the NAS (before and after the draft).

'I just felt a bit different': Evie's symptoms went under the radar until late diagnosis

By convenor |

Dana Daniel

Evie Gallagher, 17, says primary school was tough as a girl with undiagnosed autism.

"I just felt a bit different to everyone else, because people were learning at different paces," she said.

After the Albanese government launched the first National Autism Strategy last week, Evie and her mum - ACT Labor senator and Finance Minister Katy Gallagher - decided to share their story, so other families might have a different journey.