advocate's letter to the NDIA

By convenor |

A disability advocate, Ms Julie Phillips, wrote this letter (link here PDF 3.5Mb) to the David Bowen, CEO of the NDIA, about early intervention for autism spectrum disorder. The letter starts:

I refer to the recent article in The Australian earlier this week 'Autism Cost Estimates Wrong'.

The article in The Australian that she refers to is available here: Bob Buckley: NDIS autism cost estimates ‘wrong’

Sam’s autistic but he doesn’t need a cure, he’s just different

By bobb |

Sam Davis wants to groom elephants when he is older, taught himself to read before the age of five and is autistic.

These are just some of the elements that make the five-year-old who he is, says mother Jessica Davis, who has made it her mission to intervene as little as possible in his condition.

“Something we did from the diagnosis is say: no, this is Sam and this is who he is,” Ms Davis said. “We have tried from day dot to see how he operates in the world — he just has some differences.”

autism groups want bullying in schools gone

By convenor |

Media Release

Autism groups around the country agree that bullying of autistic students in schools must be properly addressed.

For years, Autism Aspergers Advocacy Australia (known as A4) has cited published research showing bullying of autistic students in schools is a major problem and the result is abysmal education outcomes for autistic students (see http://a4.org.au/node/1068 and http://a4.org.au/node/1032).

Gluten- and casein-free diet makes a meal of autism science

By bobb |

by Andrew Whitehouse

From the moment a child is diagnosed with autism, their family enters the unknown. Conference halls are lined with salespeople, letterboxes are stuffed with pamphlets, and life is transformed into a whirlwind tour of a fantastical array of therapies and potions that are positioned as the “cure all” for their child’s difficulties.

Students with disability shouldn't be underestimated

By bobb |

As school goes back for the year, the Senate report into the systemic failings of the education system for students with disability is very timely. In the myriad emails principals will see in their inbox, I hope mention of this report is one of them. 

The report calls out the system's "entrenched culture of low expectations" towards students with disabilities. If parents score a school that has an enabling culture towards disability, you have won the "lottery". I know this first-hand because my feisty mother managed just that.

Children with disabilities risk being misdiagnosed in order to receive school funding support

By convenor |

In Australia, children with disabilities only receive additional government funding if they fall into a recognised disability category. As a result, schools and parents often come under pressure to obtain the “right” diagnosis for their child. Such misdiagnosis carries a hidden cost.