There’s lots about autism to be angry about, but funding models isn’t one of them

By bobb |

Holly Hughes

Note: given the strong pro-government stance in this article, Ms Hughes should have also disclosed her affiliation with the Liberal Party - see http://www.afr.com/brand/rear-window/election-2016-connie-fierravantiwe…;

The National Disability Insurance Scheme is a game changer for people with a disability and everyone who loves and supports them. Families will finally have effective choice and control over who provides the services that they actually want and need.

Living with Spiderboy: Raising a child with ASD

By bobb |

When you’re a parent of a child with high-functioning autism, you learn to make allowances. But should borderline arachnophobe Ian Rose allow his son a pet spider for his birthday?

Ian Rose

Spiders. Why did it have to be spiders? The latest in a series of obsessive enthusiasms that have characterised our son’s early childhood, the spider is not a beast to which I’ve ever warmed.

information about Disability Support Pension

By convenor |

Dear the Hon Jane Prentice MP

A4 members have expressed concern about Centrelink’s Disability Support Pension (DSP) eligibility and processes. They commented that “the letter you get from Centrelink tells you nothing about where to find the criteria for how [Centrelink] judges in/out”.

A4 could not find clear descriptions on government websites (or elsewhere either) of:

When a family member has a disability, what happens when the carer doesn't come?

By bobb |

The disability support industry is facing a dramatic shortage of trained carers, leaving thousands of families without regular care and much needed respite.

Lateline spent a day with Fiona Hough and her five-year-old son Charlie, who has autism, to see how they cope when the carer doesn't come.

"Not having that person there, it's amazing how quickly you can get down into really dark territory," Ms Hough said.

Disability agencies say they are struggling to recruit staff and keep up with the demand from families in need.

'We almost lost him': Canberrans with special needs turned away from hospital

By convenor |

Sherryn Groch

As new research reveals Australians with intellectual disabilities are dying avoidable deaths, two Canberra carers share their own 'horror' stories.

It started with just a runny nose and a routine trip to the doctor. Then Gungahlin mother Therese Bean noticed her son was losing weight. 

Urgent need for cause of death reporting system for Australians with intellectual disability

By bobb |

DAN WHEELAHAN

The deaths of more than 700 Australian adults with an intellectual disability could have been avoided with more appropriate health care and monitoring, a UNSW study has revealed.

Research by UNSW has found that while Down syndrome itself doesn’t cause death, it is still coded that way in a flawed classification system. Photo: Shutterstock.

Clue on why boys more prone to autism

By bobb |

Sarah Wiedersehn

Scientists have found that brains with a "typically male" structure, even among women, are linked to a higher risk of autism.

A German study of high-functioning adults with autism spectrum disorder (ASD), also known as Asperger syndrome, found females with more typical male brain anatomy were about three times more likely to have ASD.