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emerging description of the new NDIS Early Intervention approach

By convenor |

The NDIA has released some new information  about how it will deliver Early Intervention for children. I surmise that the approach described in the NDIA's Market Position Statement for South Australia (June 2016) will apply pretty generally. This information is aimed at service providers, not at (prospective) NDIS participants, so it does not really explain the new approach for that audience. 

On page 22, the document says:

Jeanette Purkis on autism and empowerment

By convenor |

When Jeanette Purkis was first diagnosed with autism two decades ago, the condition was stigmatised, and poorly understood. From prison to parenthood, she shares her story of surviving, thriving, and learning to accept herself.

As a child, I was very odd. Everyone would say to my mum, 'What's she doing now?' because I was a very energetic child and I was quite naughty, very determined.

When I went to high school, things got very bad. People hated me. People really bullied me and I was the least popular child.

5 Lessons My Autistic Son Taught Me About Fatherhood

By convenor |

Ron Fournier is the author of the upcoming Love That Boy: What Two Presidents, Eight Road Trips, and My Son Taught Me About a Parent’s Expectations.

"Love your child for who he is, not who you want him to be”

Moments after my son was diagnosed with autism, my wife confronted me in the doctor’s parking lot. “It’s time to step up,” Lori said. Be a better father. She told me to take a series of road trips with Tyler—to bond with our 12-year-old boy and teach him to navigate a world that isn’t wired like him.

Turns out, Tyler did the teaching.

Aaron Pajich: Women charged with murder of teenager found buried in backyard appear in court

By convenor |

By Irena Ceranic

Jemma Victoria Lilley, 25, and Trudi Clare Lenon, 42, were charged after police found the body of Aaron Pajich under a freshly laid concrete slab in the backyard of their home on Broughton Way in Orelia.Two women accused of murdering an 18-year-old man in Perth's southern suburbs have appeared in court.

The Perth Magistrates Court was told Mr Pajich, who had Asperger's syndrome, was killed on June 13, the same day he was last seen at a taxi rank at the Rockingham City Shopping Centre.

Lilley and Lenon were not required to enter a plea and have been remanded to face Stirling Gardens Magistrates Court next Wednesday.

One of the accused women had studied with Mr Pajich at an educational facility in Kwinana.

One family's battle to rescue their autistic son from the pit of despair

By bobb |

By the age of six, Brandon* had been bullied so cruelly in the playground that he told his parents he wanted to die. 

His distraught parents, Travis and Samantha, battled the Education Department for years for support for their traumatised autistic son, and even submitted a complaint to the Australian Human Rights Commission. But finally, with help from the right school, his parents have turned their son's life around. 

Maitland mum calls for better support for children with disabilities in mainstream schools

By bobb |

Donna Sharpe

A Maitland mother has gone to the Human Rights Commission claiming her special needs child has been bullied and discriminated against because of a massive gap in the education system between children with and without disabilities.

The mother, Robyn, who requested we only use her first name, said her son, 13, had been the target of discrimination, excluded from school excursions and continually bullied.

Sharing Treatment Decisions in Autism May Challenge Doctors and Parents

By bobb |

CHOP Researchers Find Gaps in Knowledge, Communication about ASD Treatment Choices

Parents of young children diagnosed with autism spectrum disorder (ASD) may experience significant difficulties in discussing treatment options with the child’s pediatrician, according to new research. Among the barriers are problems with communication, physicians’ lack of knowledge about specific ASD treatments and community resources, and uncertainty about the pediatrician’s role in making treatment recommendations for a child with ASD.

Many parents in the study reported that they did not discuss the choice of any treatment options with their pediatricians, and others said their physicians provided only general recommendations or referrals. The study team suggests that tools such as decision aids and practice guidelines may help foster more effective communication between families and pediatricians.