The foreword to this report says "the value of informal care has increased to exceed $40 billion per annum in 2010, 33% higher than in 2005". It says this is based on $31 per hour replacement costs. Probably, some of the value is estimated based on conjugate/centre-based care - so better care would be more expensive.

This report is not autism/ASD specific ... but is contains valuable and relevant material.

Research on only one treatment is rigorous enough to earn an A grade

Image: Photograph by Joi, courtesy Flickr

By Nancy Shute October 7, 2010

Parents who research treatments for autism are confronted with a bewildering array of options, almost all of which have never been tested for safety and effectiveness. Organizations like The Cochrane Collaboration, which reviews the quality of evidence for medical treatments, are putting more effort into evaluating popular alternative treatments.

So far, the most comprehensive review of alternative autism treatments comes from two pediatricians: Susan Hyman of the University of Rochester School of Medicine Golisano Children's Hospital at Strong and Susan Levy, a clinical professor of pediatrics at the University of Pennsylvania School of Medicine and The Children's Hospital of Philadelphia. Their 2008 analysis gave each treatment a letter grade for the quality of the research conducted up to that point; the mark, however, is not a ranking of the treatment's safety or effectiveness.

When girls with symptoms of autism or ADHD seek professional medical help, their problems are often played down or misinterpreted, and there is a real risk that they will not get the help or support they need. As such, more training is needed in this area, particularly in the public sector, reveals a thesis from the University of Gothenburg.

Maureen S. Durkin, et. al.

Abstract

Background

This study was designed to evaluate the hypothesis that the prevalence of autism spectrum disorder (ASD) among children in the United States is positively associated with socioeconomic status (SES).

Methods

Debra Jopson October 4, 2010

A researcher who has found strong evidence that autism is caused by mercury poisoning has been refused access to data that could point to emissions from coal-fired power stations.

The director of the Swinburne Autism Bio-Research Initiative, David Austin, said the data on autism incidence by postcode could quickly answer the question of whether mercury emissions from power stations are implicated in babies and infants developing the disorder.

Louise Hall, September 30, 2010

A MOTHER who raised serious concerns about the care of her intellectually disabled daughter at a group home was taken to the Guardianship Tribunal where the state government tried to strip her parental rights.

Documents obtained under freedom of information show disability bureaucrats tried to portray the mother as mentally ill and unfit to make decisions about her daughter, then 19.

BY MONIQUE EBRINGTON — 28 Sep, 2010 12:00 AM
WESTERN suburbs parents have welcomed state government funding for a feasibility study for an autistic school catering for prep to year 12 students.

At present, Western Autistic School has campuses in Deer Park and Niddrie, but children can attend for only four years before going into mainstream or special schools.

Altona North resident Mark Websdale said a recent meeting with Education Minister Bronwyn Pike was a step towards a new school.

Mr Websdale is a member of Autism Schools Action, a group of parents in the western suburbs who have been lobbying MPs on the issue for several years.

"We have been quite frustrated over a long period of time to get no apparent result," Mr Websdale said.

September 29, 2010 Carol Nader

AFTER five years of struggling with the relentless demands of a little boy with severe autism, Anna finally snapped. She drove him to a hospital and asked child protection workers to meet her there and take him.

They came and collected her boy. She returned home to a strange quiet in the house. She thought it would be for the best, that he'd be somewhere safe.

Jewel Topsfield; September 15, 2010

VICTORIAN principals are fed up with monster workloads and the state government's failure to properly support students with disabilities.

Less than three months from a state election, a survey shows that principals' assessments of both the state government and the Education Department are the most negative since 2005.

Unsustainable workloads dominate their concerns about their personal situations - principals work an average of 59 hours a week - while the lack of resources for disadvantaged students is their chief gripe about their schools.