This article relates to people with disability generally; it is not specific to ASD.

Shannon Jenkins

Males and people with higher incomes are more likely to benefit from the National Disability Insurance Scheme (NDIS) than other demographic groups are, according to a new report.

The article by BMC Public Health, a journal which looks at the community impact of health policy and practice, studied how social determinants of health at the individual level can contribute to deep-seated health inequalities when combined with complex policy-delivery systems.

It found the ability to exercise choice is distributed unequally through personalisation schemes like the NDIS.

Atypical eating behaviors may be a sign a child should be screened for autism, according to a new study from Penn State College of Medicine.

Research by Susan Mayes, professor of psychiatry, found that atypical eating behaviors were present in 70% of children with autism, which is 15 times more common than in neurotypical children.

Atypical eating behaviors may include severely limited food preferences, hypersensitivity to food textures or temperatures, and pocketing food without swallowing.

Henrietta Cook

An increasing number of students with autism are being excluded from mainstream classes according to new research which raises concerns about the segregation of children with disabilities.

The Monash University research found that between 2009 and 2015, the inclusion of autistic students in mainstream classes dropped from 18.8 per cent to just 3.3 per cent.

During this period, the proportion of students with autism in special schools increased from 37 to 52 per cent.

High profile study claims mice show “autism-like” behaviour. But does the evidence stack up?

Jon Brock

Two weeks ago, a paper published in the journal Cell claimed to provide evidence that microbes in the gut contribute to the development of autism. The researchers, led by Gil Sharon and Sarkis Mazmanian at the California Institute of Technology, found that mice with gut bacteria from autistic children exhibited more “autistic-like” behaviours than mice whose gut bacteria came from non-autistic children.

A4 and AFDO represented in UN Side Event

13 Jun 2019 -  Autism is a partially genetic, lifelong neurodevelopmental difference, yet there is limited research examining parenting in autistic mothers.

This side-event will discuss, from both an academic and an experiential point of view – including through 2 panellists who would be speaking both as researchers and as autistic mothers – the experiences of autistic mothers in areas related to parenthood: pregnancy, childbirth and the postpartum period, self-perception of parenting strengths and weaknesses, communication with professionals in relation to one's child, and the social experience of motherhood, including disclosing one’s diagnosis of autism in parenting contexts.

Helen Dickinson

More than 277,000 people have already benefited from the NDIS, but there’s room to improve.

In one of his first official public remarks since being re-elected, Prime Minister Scott Morrison pledged that addressing failures in the national disability insurance scheme (NDIS) would be a priority for the new government.

Stuart Robert has assumed the role of minister for the NDIS and will be charged with delivering on this important agenda.

So what does the new minister need to do to get the NDIS back on track?

AFDO is pleased to be participating again this year in the 12th Session of the Conference of States Parties (CoSP) to the Convention on the Rights of Persons with Disabilities (CRPD).  CoSP will be held from 11th to 13th June 2019 at the United Nations Headquarters in New York.

AFDO and A4 are co-sponsoring a side event, "Leave No Autistic Mother Behind: Autism and Motherhood – Experiences, Challenges and Positive Strategies",  on Thursday 13th June from 3pm – 4:15pm (New York time).

Helen Campbell knows the risk her daughter Annie poses. Her needs have been deemed so complex, that the South Australian Government has funded two carers at once to look after her in recent years.

Despite current funding through Disability SA, Ms Campbell and her eldest daughter Lisa have struggled to find agencies or carers willing to take Annie on a long-term basis.

She is worried this will only be more complicated when her daughter transitions to the National Disability Insurance Scheme (NDIS) at the end of June.

Ginny Russell  

About half of all people with autism also have intellectual disability. But a great deal of autism research is drawn almost exclusively from participants without intellectual disability, as my colleagues and I reported earlier this year1.

And yet, the researchers tend to generalize the findings across the whole spectrum.

This sort of selection bias has a lasting effect on our understanding of autism. It could also undermine the search for effective therapies for people with the condition.

Today we call on autistic Australians, families, carers, and the broader autism community to have their say on the future of autism research priorities. Individuals and organisations involved in providing services and supports, as well as managing policy that affect autistic people and the autism community are also asked to contribute.

The outcome of this community consultation process will help guide the future focus of autism research activities and research funding in Australia.