Autism Aspergers Advocacy Australia

Australia's National Disability Insurance Scheme's (NDIS) Operational Guidelines – Access are dysfunctional in relation to autism spectrum disorder. The NDIS fails many people with autism spectrum disorder (ASD), denying them the services and supports they need.

People with ASD are among the most vulnerable and disadvantaged people in Australia. The Government is not giving people with ASD a fair go. The message is simple. Government needs to act to support people with ASD and to improve their outcomes. The NDIS eligibility criteria are designed to exclude some people with autism spectrum disorder from the NDIS, people who are assessed as needing disability services by allied health professionals with specific expertise in ASD. And for those people with ASD who are deemed eligible for the NDIS service and support, NDIS individual planners (gatekeepers), who mostly lack expertise in and understanding of autism, reject some requests for essential disability services and supports.

Following is the evidence and justification for this simple claim that the NDIS, the scheme created to address the enormous disadvantage that Australians with a disability experience, in its initial implementation is failing people with ASD.

More information is now available about the policies of the major parties relating to people affected by autism spectrum disorder ahead of the Tasmanian state election. You can download information from the three major parties from the following links:

• Labor Party
• Liberal Party
• The Greens

  A brief summary is that:

The NZ High Court "found that Green Bay High School in Auckland was not justified in excluding a student with Asperger's syndrome, following a row he had with a teacher." [see article]. This may not be over yet.

I am not a lawyer and I do not know NZ law. I know that under international law, paragraph 3 in Article 23 of the United Nations Convention on the Rights of the Child (CRoC) says every child has a right to "education, training, health care services, rehabilitation services [and] preparation for employment" ... and that "the state" is ultimately responsible for ensuring this happens. Specifically, in relation to children with a disability, the CRoC says ...

... assistance ... shall be provided free of charge ... and shall be designed to ensure that the disabled child has effective access to and receives education, training, health care services, rehabilitation services, preparation for employment and recreation opportunities in a manner conducive to the child's achieving the fullest possible social integration and individual development ...

The [UK] National Institute for Health and Care Excellence (NICE) has today published its Quality Standard on autism setting out what good services for children and adults with autism should look like.

Conclusion: Autism is an expensive condition. Previous cost research may underestimate the total cost of supportive care ...

see http://www.policyschool.ucalgary.ca/?q=content/value-caregiver-time-cos…

Increased awareness of autism spectrum disorder (ASD) is placing huge demands on health care systems and health care professionals to help children and their families cope with the disorder. A comprehensive evidence-based review published in CMAJ (Canadian Medical Association Journal) aims to help physicians provide appropriate medical support to families of children with ASD, from detection to treatment.

Susan Boyle: diagnosed with Asperger's syndrome. Photo: Getty Images

Scottish singer Susan Boyle has revealed that she has been diagnosed with Asperger's syndrome, a high-functioning form of autism.

Boyle, a 52-year-old church volunteer who became a global singing sensation, told Britain's Observer newspaper she had been diagnosed a year ago and spoke of her relief after years of bullying for her learning difficulties.

I think people will treat me better because they will have a much greater understanding of who I am and why I do the things I do.

"It was the wrong diagnosis when I was a kid," she said.

Warning: this material is depressing

Autism Spectrum Australia released a report on the lives of adults with autism spectrum disorder but without intellectual disability, a group of vulnerable citizens who are often/routinely denied appropriate and necessary services and supports.

The Coalition in line with its pre-election commitment has directed that DisabilityCare resume its original name of the National Disability Insurance Scheme (NDIS).

The return to NDIS has two purposes. The first is to leave behind a name that was seen by many people with disability as patronising and not reflecting the intent of the scheme to have the individual at the centre and in charge.

People with disability don't so much want to be cared for as supported to be as independent as they can.

Autism activist

Many people would find it impossible to devote the time and energy to advocacy activities while also caring for a child with a disability. For Bob Buckley, however, having a child with Autism Spectrum Disorder (ASD) has driven his desire to raise awareness, attract funding and advocate for better opportunities for people living with ASD. After his son was diagnosed with the disorder, Bob began to apply his outstanding academic and analytical skills to become one of Australia’s most formidable ASD activists. In 2002, Bob co-founded Autism Aspergers Advocacy Australia, which he convenes to this day.