Autism Aspergers Advocacy Australia

A month ago, a NDIS planner in the ACT told a mother that the NDIA had "two publically available reports that the NDIS is using to avoid funding ABA therapies in kids aged 5 and above i.e. school-aged kids".  The NDIS planner told the mother:

1. once kids reach school, the schools are meant to fund appropriate behavioural management plans (also occupational and speech therapy),
2. as kids after school are too tired to have therapy, then these unnamed studies state that ABA therapy is no longer effective, and
3. the NDIS would not fund ABA for kids at school. 

One thing that is important to know about autism up front: There is no cure for autism. So, products or treatments claiming to “cure” autism do not work as claimed. The same is true of many products claiming to “treat” autism or autism-related symptoms. Some may carry significant health risks.

The Food and Drug Administration (FDA) plays an important role in warning these companies against making improper claims about their products’ intended use as a treatment or cure for autism or autism-related symptoms.

Speaking Out for Autism Spectrum Disorder (SOfASD), a local ASD advocacy group in the ACT, wrote to the ACT Minister for Education raising concerns about the lack if discernible progress with getting registered/certified behavioural service and support for autistic students in ACT schools. SOfASD asked for a meeting but the Minister's response ignored their request.

PETER MICKELBUROUGH

A DISABLED boy who claims he was assaulted, locked in a “time-out” room and physically restrained during six years at various state schools has won a “substantial” compensation payout from the government.

But its size will remain hidden from the public, despite a Federal Court judge’s expression of “disquiet” over this policy of secrecy by Victoria’s Department of Education.

Bob Buckley

The Australian Bureau of Statistics (ABS) released new information about autistic people in Australia. The information comes from data collect for the Survey of Disability, Ageing and Carers (SDAC) in 2015.

The ABS reports

Prof Baron-Cohen spoke out about his fears in a speech while in New York

A Cambridge professor fears the basic human rights of autistic people are not being met.

In a speech marking Autism Awareness Week, Professor Simon Baron-Cohen, Director of the Autism Research Centre at the University of Cambridge, told the United Nations in New York today, that even with the UN Convention on the Rights of People with Disabilities having been adopted in 2006, people with autism still do not enjoy human rights to the same extent as everyone else.

A4 made a submission to the Productivity Commission study of National Disability Insurance Scheme (NDIS) Costs. 

The submission's conclusion says:

Previously, we said that the NDIS has substantial potential to improve the lives of autistic people. They may have access to more services and supports. They have more choice and control of the services and supports they access.

Autism Aspergers Advocacy Australia (A4) supports AFDO and others in the disability sector ...

Media Release

The Australian Federation of Disability Organisations (AFDO) today joined calls from across the disability sector for a Royal Commission into the violence, abuse and neglect experienced by Australians with disability.

By Linton Besser, Klaus Toft, Jeanavive McGregor at ABC Four Corners

"I brought him into this world, and I love him. I do all I can to help him. I'm 88 soon. I'm still battling." Jean, mother

On Monday night Four Corners exposes what happens behind closed doors in some taxpayer funded group homes for the disabled and talks to the mothers and carers taking on the system.

"It's about time for me to tell this." Maria, mother

A Telethon Kids Institute study has found children with disabilities are three times more likely to be maltreated compared to other children but that risk varies by type of disability.

Researchers analysed 524,534 children born in Western Australia between 1990-2010 for the study “Maltreatment Risk among Children with Disabilities”, published in the journal Pediatrics.

Overall, they found 4.6 per cent of all children had a maltreatment allegation.