Report

The economic value of informal care in 2010

The foreword to this report says "the value of informal care has increased to exceed $40 billion per annum in 2010, 33% higher than in 2005". It says this is based on $31 per hour replacement costs. Probably, some of the value is estimated based on conjugate/centre-based care - so better care would be more expensive.

This report is not autism/ASD specific ... but is contains valuable and relevant material.

Girls with autism or ADHD symptoms not taken seriously

When girls with symptoms of autism or ADHD seek professional medical help, their problems are often played down or misinterpreted, and there is a real risk that they will not get the help or support they need. As such, more training is needed in this area, particularly in the public sector, reveals a thesis from the University of Gothenburg.

APAC'09 Prevalence presentation

The presentation below was given at APAC'09 in Sydney. Among other things, it shows the growing number of children whose family get's Carer Allowance (that is, children who have been formally diagnosed with Autistic or Asperger's Disorders and also registered to receive Carer Allowance).

Previously, a paper on autism prevalence in Australia was published in the peer reviewed proceedings of the 2004 Biennial Australian Autism conference (see http://a4.org.au/sites/default/files/buckley_submit2.pdf).

The nature and impact of caring for family members with a disability in Australia

by Ben Edwards, Daryl J. Higgins, Matthew Gray, Norbert Zmijewski, Marcia Kingston

Australian Institute of Family Studies, 2008.
ISBN 978-1-921414-02-2. ISSN 1447-1469 (Print); 1477-1477 (Online).

Full Report - The nature and impact of caring for family members with a disability in Australia (PDF 3.3 MB)

Senate Inquiry into Special Disability Trusts - final report

The Senate Inquiry into Special Disability Trusts published its report entitled Building trust: Supporting families through Disability Trusts (see http://www.aph.gov.au/senate/committee/clac_ctte/disability_trusts/repor...). The report is quite short (56 pages). It provides 14 recommendations.

Economic Costs of Autism Spectrum Disorder

This study of the economic costs of Autism Spectrum Disorder (ASD) in Australia has been undertaken for the Autism Early Intervention Outcomes Unit (AEIOU).

The objective of this study is to develop a better understanding of the likely resource cost incurred by people with ASD, their carers, Government and society. The cost-based approach that is employed here seeks to estimate the resources required to deliver services that specifically relate to the condition of ASD.

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