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Is there room at the advocacy table?

by Renee Bugg

It can be hard for parents to take a step back and allow their children to have their own voices. However, when it comes to advocacy, it’s especially important to find the right balance. Here Renee Bugg, parent to Poss who is on the Autistic Spectrum, talks about how they’re meeting the challenge.

On cages for autistic students: World Autism Awareness Day in Australia

A story broke on World Autism Awareness Day in Australia's Capital that a Canberra school caged an autistic student, a student diagnosed with autism spectrum disorder (ASD), in a classroom. Several people commented that this in not a remarkable or unique story.

autism and quality of life

A recent research publication from overseas says a "study concerning the elderly with autism showed that the difference in quality of life is similar in the elderly. Age, IQ and symptom severity did not predict quality of life in this sample. Across the lifespan, people with autism experience a much lower quality of life compared to people without autism."  (see http://aut.sagepub.com/content/19/2/158....).

Questions that spring to (my) mind are:

Disability misinformation in politics and lazy journalism

The recent Government and media vilification of people with a disability (see here), and the failure of non-government politicians to strike back effectively, is alarming. I usually stick to matters relating to autism spectrum disorder, but I have to speak out about this issue.

letter: need to act on NDIA's mad transport/travel policy

Dear The Honourable K Andrews MP

subject: Urgent: notify the community about the NDIA's transport policy review

Recently, someone reported on Facebook that their child's transition to the NDIS resulted in limiting or denying their child with a disability access to their school. Basically, the NDIS planner would not fund transport to and from school for a child with a disability.

I reviewed the NDIA's policy and on 14th June I posted the following to the Facebook discussion group …

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