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The Disability Clothesline

What is the Disability Clothesline?

We started this project because people with disability and their families did not h
ave a voice.

When we tell our stories about abuse, neglect and violence, people do not always listen.

But if lots of us tell our stories, people will listen.

We want to tell our stories to the Australian community.

We are going to do this by using teeshirts to share our stories.

This will spread the message we want people to hear.

'Disability violence and abuse is not okay.'

You can help us by telling your story.

Held back: The experiences of students with disabilities in Victorian schools

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A report on the education of students with a disability in Victorian was released by the Victorian Equal Opportunity & Human Rights Commission.

Parents' exhausting battle with education system

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Kerrie Curtis with son Harry and daughter Isabelle.
Photo: Simon Schluter

Jewel Topsfield Education Editor for The Age, 24 September 2012

AS THE mother of three children on the autism spectrum, Kerrie Curtis is a veteran of battles with the Victorian education system.

Her latest fight is to get special VCE exam provisions for her oldest son Liam, who has Asperger's, an anxiety disorder and a learning difficulty. Ms Curtis' frustration is not with his school, RMIT, which she says has been absolutely superb.

However she says the Victorian Curriculum and Assessment Authority has been ''extraordinarily inflexible''. Just weeks away from VCE exams she is still trying to apply for him to use a laptop in exams.

Meanwhile, she is fighting to get her son Harry's primary school to pay for the speech therapy and assistance with emotional regulation and social skills that medical experts say he needs.

Searching for honest answers

Posted in

Jack Sullivan

September 15, 2012 Opinion Sue O'Reilly

Why did government agencies allow Jack Sullivan to be placed in a respite facility - where he later died - which they knew had a questionable history? Sue O'Reilly reports

In early 2008, when Esther Woodbury waved goodbye to her disabled teenage son as he was driven from their Ainslie home for one of his occasional weekends of government-funded respite care in Queanbeyan, she had no idea childcare and disability agencies in NSW and the ACT had recorded numerous allegations of physical, sexual and emotional abuse against the respite facility.If anyone in authority had bothered to alert her, Woodbury says, she would immediately have withdrawn her 18-year-old son, Jack Sullivan, who as a result of severe autism and epilepsy was particularly vulnerable. But nobody in authority did bother to alert her - and that weekend, in respite care funded by the ACT government agency Disability ACT, Jack Sullivan drowned while having a bath.

DPP drops Sullivan probe

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THE NSW Director of Public Prosecutions has dropped investigations into the death of profoundly autistic Canberra teenager Jack Sullivan more than four years ago.

Almost two years since the case was passed to the DPP, the public prosecutor says it does not have enough evidence to press manslaughter charges against a person whose name has been suppressed.

Since Jack's death, his mother, Esther Woodbury, had assumed her son drowned in a bath after an epileptic seizure while in outside care.

The autism generation: Why are so many children born autistic?

By Louise Milligan
Wednesday, August 29, 2012

Why is the number of children with autism doubling every five years? For Louise Milligan, the quest for an answer is deeply personal.

There is no other way to describe the feeling, except to say I felt I had been shot. We were sitting in a psychologist's office, being told that our son, our delicious three-year-old boy, had an autism spectrum disorder.

New autism diagnosis fuels funding concerns

By Emily Bourke

Thousands of Australian children with autism could miss out on government-funded support and services because of changes to the way autism is diagnosed.

The manual of medical disorders known as the DSM 5, used by psychiatrists around the world, is being updated.

The updated American guidebook for mental disorders is expected to be released in May next year, but already it has many people nervous.

Autism diagnosis rules to change

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THOUSANDS of children diagnosed with autism could lose access to thousands of dollars in federal support and other subsidies under changes planned for the manual of medical disorders used to guide psychiatrists worldwide.

Autism patient advocates say the first Australian research on the likely impact of the changes suggests 23 per cent of those who qualify as having a form of autism would no longer do so.

New website for supporting tertiary students with ASD

The Olga Tennison Autism Research Centre, La Trobe University, has developed an online resource for ASD students, parents, and tertiary staff. The website development was part of a larger project which aims to support tertiary students diagnosed with ASD.

Here’s the link: http://www.latrobe.edu.au/otarc/info/support

Briefly, each section contains the following information:
• Students: transition and orientation, disclosure, what to expect at university and TAFE, learning at university and TAFE.

Anxiety and bullying studies reveal startling findings

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Parents are over-reporting anxiety in their children with autism, while bullying of children with autism at school is going unreported until it escalates, according to studies currently underway at Bond University’s Centre for Autism Spectrum Disorders.

Preliminary findings of the first study indicate that parents and care givers often mistake repetitive behaviours such as rocking and hand flapping as an indication that their children are experiencing high levels of anxiety.

My son, and others, are owed an inquiry into Yooralla

Posted in

Sandy Guy
July 2, 2012

Opinion

LAST Tuesday I received a phone call from a former Yooralla regional manager. She said police were going to the home of my 31-year-old son, who is severely disabled, to interview him and the other five residents of the house, which is run by Yooralla.

Stunned, I asked her what was going on. She replied that a Yooralla casual carer was in police custody charged with alleged abuse. I asked her when the police were going to my son's house. She said they were already there.

Health-care disparities exist for children with autism spectrum disorders

June 11, 2012 in Autism spectrum disorders

Children with Autism Spectrum Disorders (ASD) require an array of specialized health care services. With these services come higher costs for parents and insurance providers. University of Missouri researchers compared costs and types of services for children with ASD to costs and services for children with other conditions like asthma or diabetes. The researchers found children with ASD paid more for health care than children with other conditions. In addition, children with ASD used more services yet had less access to specialized care.

Australia fails on children's rights, says UN

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Farah Farouque
June 25, 2012

The UN report noted that indigenous children were significantly overrepresented in the criminal justice and child protection systems.

The UN report noted that indigenous children were significantly overrepresented in the criminal justice and child protection systems. Photo: Angela Wylie

A UNITED Nations committee has pulled up Australia on the status of its children, citing concerns from ''serious and widespread'' racial discrimination faced by indigenous youth to inadequate numbers of newborns being breastfed by their mothers.

Suspend judgment: keep kids at school

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Justine Ferrari, National education correspondent
From: The Australian
June 18, 2012

SUSPENDING students from school for bad behaviour is counterproductive, with students who have been suspended twice as likely to be excluded again in the next 12 months.

Research by Australian Catholic University professor Sheryl Hemphill found about 6 per cent of students in Years 6-8 have been suspended, rising to 12 per cent of Year 10 students.

Vic Education says too many donuts cause failure to learn

A court case is running in Victoria (see http://a4.org.au/a4/node/481) about education for a child with a disability. So far the department has said that the reason for the young man’s failure to learn is that, he ate too many donuts.

An expert witness for the Education Department told the court said standardised assessments are not as good as unwritten teacher observations because, teachers have a special gift.

The department lawyers and their expert witness said that people with an intellectual disability don’t learn, so no matter what you do with them they don’t improve.

GPS Personal Locators Provide Parents Peace Of Mind If Family Member Wanders & Becomes Lost

TrackingCentral Pty. Ltd, a Brisbane based company supplies a miniature GPS Personal Location device called CareTracker which is used by carers or family members to locate a loved one in the event they wander off or become lost.

The CareTracker is the size of a match box and can be carried in a pocket or backpack or else securely attached to the wrist / ankle or clothing. The CareTracker has a battery life of up to 20 days.

Teen sues over school failure

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Beau Abela. Photo: Craig Abraham
Beau Abela photograph

Maris Beck, May 1, 2012

A TEENAGER is suing the Education Department in Victoria because he cannot read, write or count properly, saying he was silenced with medication and teachers blamed his inability to learn on eating doughnuts.

Beau Abela, now 18, claims he was victimised and discriminated against because of his complex learning disability.

Barrister David Hancock told the Federal Court in Melbourne that his client, Beau, did not have the literacy or numeracy skills to get a job. “Instead he sits at home wondering what to do with his life.”

Mr Hancock said that the department had blamed Beau, his family, “even his diet” and had not provided enough help. Mr Hancock contrasted reports from prep and early school years describing Beau as happy, responsible and friendly with later reports of aggression and disengagement. “The longer Beau has been at school, the more his intellectual functioning has actually declined.”

He told the court, presided over by Justice Richard Tracey, that Beau had passed through the system even though he had failed to meet the required academic levels, and despite his father’s repeated concerns.

Australian icon lights up blue for Autism


2nd April 2012

The Museum of Australian Democracy at Old Parliament House in Canberra will be one of the first landmarks in the world to Light it Up Blue on World Autism Awareness Day.

The United Nations General Assembly declared 2nd April as World Autism Awareness Day (A/RES/62/139) to help improve the lives of children and adults with autism spectrum disorders (ASD) so they can lead full and meaningful lives.

Concern Over Changes to Autism Criteria Unfounded, Says APA

Posted in

Deborah Brauser

January 25, 2012 — Concerns that proposed changes to autism criteria in the upcoming Diagnostic and Statistical Manual of Mental Disorders, Fifth Edition (DSM-5) will exclude many individuals from diagnosis and treatment are unfounded, says the American Psychiatric Association (APA).

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