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ABC 4 Corners: Breaking Point

Will Australia's flawed disability support system be reformed in time to save families now at breaking point?

See video, transcript, extended interview and audience forum at http://www.abc.net.au/4corners/special_eds/20100215/disability/

release of DSM-5 draft

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This week saw the release of a draft of the next edition of the main diagnostic bible used in psychiatry, the DSM-5 (Diagnostic and Statistical Manual of Mental Disorders).

The long process ‘by committee’ has been controversial, and in a first for the American Psychiatric Association (APA), a draft has been made public for people to read and feedback on here. They even have a Facebook page, with a call for fans.

Here’s what the chairs of the APA’s DSM-5 taskforce have to say to you:

The end of Asperger's? Call for your thoughts...

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Psychology Today's 'Asperger's Diary' blogger, Lynne Soraya, reflects powerfully on what this means to her, and on the confusion and clarity
of labels. Read her full post here.

Cycle of common sense

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GREG BARNS, February 15, 2010

TASMANIA'S politicians deserve an accolade for refusing to be drawn, into a law and order auction during the election campaign.

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Over the weekend, the Liberal Party announced it would develop Australia's first government-run early-intervention program for children who show signs of having an intellectual disability. The Liberals announced that they "have committed $4.5 million over four years to begin a staged, long-term and evidence-based approach to establishing early screening, diagnosis and early intensive treatment for children with autism".

Tasmania Libs make autism/ASD an election issue

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ABC Tasmania website

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The Opposition also announced $4.5 million to deliver autism services to children.

"We can provide them with 20 or 30 hours per week of very, very serious intervention strategies," said Liberal health spokesman, Brett Whiteley.

One in a hundred adults have an autism spectrum disorder, says pioneering new study

The world's first ever study into the prevalence of autism spectrum disorders among adults shows that one in every hundred adults living in households has the condition – broadly the same rate as that cited for children.

While studies have been carried out into the prevalence of autism spectrum disorders among children, the report from The NHS Information Centre is the first attempt to find and count adults and older people in the community with an autism spectrum disorder, including asperger syndrome.

Autism Spectrum Disorders in adults living in households throughout England

report from the Adult Psychiatric Morbidity Survey 2007

Summary

This report presents data on the presence of Autism Spectrum Disorders (ASD), based on the data collected at phases one and two of the Adult Psychiatric Morbidity Survey (APMS) 2007. These findings were not included in the initial survey report. Estimated disorder prevalence is presented by age, sex, ethnic group, marital status, highest educational qualification, equivalised household income, economic activity status, receipt of benefits, housing tenure, area level deprivation and predicted verbal IQ. The level and nature of treatment and service use is considered, although the sample size means that this cannot be explored in detail.

SA Libs promise special autism school

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LAUREN NOVAK, POLITICAL REPORTER February 01, 2010 12:32PM

THE Liberal Opposition has pledged to set up a school specifically for children with Autism Spectrum Disorder if elected next month.

Leader Isobel Redmond announced this morning the party would establish a school staffed and designed to "meet the needs" of those children while also putting resources towards special needs children who remain in mainstream schools.

She said there was great demand from parents, who had been lobbying the government for such a solution.

COMING TO ABC3 TV IN 2010

On February 9th 2010 ABC3 will begin screening Laser Beak Man the animated series at 6.53 a.m. Laser Beak Man is the creation of 21year old Brisbane Artist Tim Sharp. Diagnosed with Autism at age 4 drawing was used as a way of helping Tim to communicate. Tim's quirky super hero reflects Tim's intellect and wicked sense of humour.

As far as we know this may be an Australian first where a young man with Autism has their art turned into a television series. We are asking the Autism community throughout Australia to support the television programme and message of ability and success.

Autistic pupils unfairly treated

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By Bruce McDougall Education Reporte, The Daily Telegraph, January 08, 2010 12:00AM

GROWING numbers of students suspended for violence, aggressive behaviour or repeated disobedience have a serious mental disability such as autism.

Families with severely disabled children said they had become the victims of an under-funded school system incapable of adequately providing for special needs.

advocacy and charitable status

The recent Federal Court decision in the matter Commissioner of Taxation v Aid/Watch Incorporated 2009 says
that an advocacy and lobbying organisation, such as A4, cannot be seen as a charitable for tax purposes.

Such a decision has major implications about how advocacy groups operate.

Here are some links to commentary on the issue ...

Autism Associated With Single-letter Change In Genetic Code

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ScienceDaily (Oct. 7, 2009) — In one of the first studies of its kind, an international team of researchers has uncovered a single-letter change in the genetic code that is associated with autism. The finding, published in the journal Nature, implicates a neuronal gene not previously tied to the disorder and more broadly, underscores a role for common DNA variation. In addition, the new research highlights two other regions of the genome, which are likely to contain rare genetic differences that may also influence autism risk.

Autism Is on the Rise (Or Is it?)

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What to make of the surprising new data.

Autism families demand more support

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Dozens of people have rallied on the steps of Parliament House in Adelaide to demand more support for children with autism.

Some parents cried as they described the emotional and financial toll of finding treatment for their children.

They are lobbying for more State Government money for medical support, to reduce waiting lists and for more special education classes in schools.

Rally organiser Daryl Barkhazen says the children deserve a better deal.

A genome-wide linkage and association scan reveals novel loci for autism

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Although autism is a highly heritable neurodevelopmental disorder, attempts to identify specific susceptibility genes have thus far met with limited success1. Genome-wide association studies using half a million or more markers, particularly those with very large sample sizes achieved through meta-analysis, have shown great success in mapping genes for other complex genetic traits.

Study by Flinders University detects signs of autism in first weeks

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Verity Edwards, September 14, 2009, from: The Australian

A WORLD-FIRST study on siblings of children with autism is showing that signs associated with the behavioural disorder appear in babies in their first weeks of life.

The Flinders University research is the first of its kind to study the behaviour of infants who have an increased risk of developing autism from as young as 10 days, and to revisit the children every second month until they are 18 months old.

2m Australians living with multiple disabilities: study

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Stuart Rintoul | September 09, 2009, Article from:  The Australian

AN estimated 10 per cent of Australians, or two million people, suffered from two or more disabilities, according to the Australian Institute of Health and Welfare.

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